SHARE YOUR STORY

Children’s Heart Surgery Fund exists to support local heart warriors and their families. There is no better way to explain our charity than using a powerful story – like yours.

Please share your experiences to help others realise they are not alone, and spread awareness of congenital heart disease and the pioneering work of the Leeds Congenital Heart Unit.

We promise to use your story to positively promote CHSF’s cause across the wider region.

To share your story, fill in the information below, and we will be in touch for any further details.

REAL STORIES

Rowan: Heart Month 2026

Rowan: Heart Month 2026

“The time in hospital was a very scary time and the resources that CHSF provide are invaluable. “CHSF is an amazing resource for children with congenital heart disease and their families!"Mum Sarah, from Grimsby, said: "Our local hospital discovered Rowan had a...

Abdul Mu’eed: Heart Month 2026

Abdul Mu’eed: Heart Month 2026

"I realised there is a whole community of heart warriors and incredibly strong parents who truly understand this journey. “There will be hard days. There will be moments of fear and exhaustion. But there will also be strength you never knew you had, love that carries...

Vincent: Heart Month 2026

Vincent: Heart Month 2026

“Everyone was absolutely incredible supporting us through every hurdle - there certainly were a lot! “There is no way we would’ve gotten through it without the Children’s Heart Surgery Fund team."Mum Katie, from Bridlington, said: “When Vincent was 9 days old, we were...

Sienna | Heart Month 2026

Sienna | Heart Month 2026

From a prenatal diagnosis to multiple life-saving surgeries, this blog shares Sienna’s incredible journey with Hypoplastic right heart syndrome (HRHS) and the care that carried her through. It also highlights the vital support her family received from Children’s Heart...

Taking the plunge for Tommy

Taking the plunge for Tommy

In May, heart mum Shannon will be taking on the Whitby Bungee Jump for CHSF - and she’s doing it for a reason very close to her heart. Her son Tommy who had his first heart surgery at 8 weeks old. "My son, Tommy, had a 6 hour open heart surgery at 8 weeks old due to...

Trustee Week: Introducing Ryan Wilkinson

Trustee Week: Introducing Ryan Wilkinson

Your name: Ryan Wilkinson Occupation: Tax Director @ BHP, Chartered AccountantsTell me about your heart hero: "My heart hero is Vinnie (my son) who is now aged 4 who was diagnosed with Dilated Cardiomyopathy. Thankfully the condition is managed with medication, and no...