SHARE YOUR STORY
Children’s Heart Surgery Fund exists to support local heart warriors and their families. There is no better way to explain our charity than using a powerful story – like yours.
Please share your experiences to help others realise they are not alone, and spread awareness of congenital heart disease and the pioneering work of the Leeds Congenital Heart Unit.
We promise to use your story to positively promote CHSF’s cause across the wider region.
To share your story, fill in the information below, and we will be in touch for any further details.
REAL STORIES
Fundraiser of the Month: Lil Louie Big Heart
Jess and Callum, parents to heart warrior Louie, organised a Family Fun Day in August this year August. To raise even more funds for CHSF, friends decided to also incorporate a sponsored bike ride too!Jess told us a bit more about Louie’s story and how it inspired...
Because of Carin: Billy
As part of our Because of Carin campaign, celebrating the incredible career of Carin van Doorn, Billy’s family share their memories of her support. Carin performed two life-saving heart surgeries on Billy - and their words show just how much her care and dedication...
Because of Carin: Seth
Heart mum Charlotte found out at her 20-week scan that her little boy Seth had Transposition of the Great Arteries. Charlotte told us about Seth’s journey through treatment at the Leeds Congenital Heart Unit and how he is faring back home in Chesterfield.written by...
Nelly
Nelly was born in February 2024 after a 'normal' pregnancy, but within hours her parents were facing unexpected news. Now, one year after her open heart surgery she is celebrating her first “heartiversary” - Nelly is thriving, and her family have raised over £11,000...
Because Of Carin: Louie
Louie’s journey through complex heart surgery has been nothing short of extraordinary. In this blog, Louie's mum Emily shares the story of their time in hospital, the incredible care they received and the strength their family found through the toughest of times. “On...
Youth Voice: Joseph
"Hello, my name is Joseph, and I am a cardiac child. "I was born with my heart condition and what has really helped me throughout my cardiac journey is music. "At the age of five, I joined Wakefield Cathedral choir - most of the time just staring at the ceiling and...





