SHARE YOUR STORY
Children’s Heart Surgery Fund exists to support local heart warriors and their families. There is no better way to explain our charity than using a powerful story – like yours.
Please share your experiences to help others realise they are not alone, and spread awareness of congenital heart disease and the pioneering work of the Leeds Congenital Heart Unit.
We promise to use your story to positively promote CHSF’s cause across the wider region.
To share your story, fill in the information below, and we will be in touch for any further details.
REAL STORIES
Autumn
Autumn was diagnosed with a heart condition before she was born and needed surgery at just four months old at the Leeds Congenital Heart Unit. Her mum Katelyn shares what the experience was like for their family - from diagnosis and hospital stays through to...
Louie
Louie’s journey through complex heart surgery has been nothing short of extraordinary. In this blog, Louie's mum Emily shares the story of their time in hospital, the incredible care they received and the strength their family found through the toughest of times. “On...
Maisy
Maisy was diagnosed with Down syndrome shortly after birth, and at just 7 months old, she had open heart surgery at the Leeds Congenital Heart Unit. Her mum Laura has kindly shared their journey - from diagnosis, and the care Maisy received, to the support they’ve had...
Blake
Blake's mum, Chelsea, said: “My partner Matthew and I found out that Blake had something wrong with his heart when he suddenly was really poorly on 30th September 2022. “We took him to Chesterfield Hospital to be seen and Matthew and I were told he had sepsis,...
Albie’s story
written by mum, Abigail"This is Albie. He is 6 and a half months old. At his 8 week check up, they discovered that he had a heart murmur. "After being referred to Leeds General Infirmary at four months old, we learnt that Albie had Tetralogy of Fallot and will need...
Bonnie
Bonnie is two years old and was born with Atrial septal defect (ASD) and Ventricular septal defect (VSD) which were surgically repaired in Leeds at age 4 months. She has just celebrated her second heart day on 4th May! Mum Charleigh tells us about Bonnie's CHD journey...