Luca’s Story

Luca’s Story

When Luca was born, mum Emma and dad Michael discovered Luca had a very loud heart murmur. The day after, they were transferred from Jimmy’s to the Leeds Children’s Hospital for a heart scan. It was then when they received the congenital heart disease (CHD) diagnosis...
Alfie’s Story

Alfie’s Story

17-year old Alfie’s family found out he had congenital heart disease (CHD) when he was just 2 months old. Following multiple procedures, Alfie is now enjoying life both as a teenager and keen LUFC supporter, as mum Kirsty tells us: “Alfie was only 7 weeks old when we...
Zak’s Story

Zak’s Story

We know it’s vitally important to share your journeys with congenital heart disease. Your experiences are both reassuring and educational for other heart families, and provide vital awareness for others. 3-year old Zak’s condition was found by complete coincidence,...
Alessia Mae’s Story

Alessia Mae’s Story

Alessia Mae is fast approaching her first birthday, but at birth she was sent urgently to her local hospital as she was critically low on oxygen and had open heart surgery at just a day old in Leeds. Mum Tierney tells the full story… “Alessia Mae was born on the 21st...
Finley’s Story

Finley’s Story

Finley Kenneth Peirson was born in July 2022 and was rushed straight to Scarborough’s Special Care Baby Unit with a suspected infection. Over the weeks that followed, Finley deteriorated and was put into an incubator. One of the doctors detected a heart murmur and...