Louie

Louie

Louie’s journey through complex heart surgery has been nothing short of extraordinary. In this blog, Louie’s mum Emily shares the story of their time in hospital, the incredible care they received and the strength their family found through the toughest of...
Support for families: June 2025

Support for families: June 2025

“As we reach the halfway point of the year, we wanted to take a moment to share what the Family Support Team has achieved so far in 2025. “Each quarter, we reflect on our progress to help everyone understand the impact we’ve made. “This update...
Maisy

Maisy

Maisy was diagnosed with Down syndrome shortly after birth, and at just 7 months old, she had open heart surgery at the Leeds Congenital Heart Unit. Her mum Laura has kindly shared their journey – from diagnosis, and the care Maisy received, to the support...
Blake

Blake

Blake’s mum, Chelsea, said: “My partner Matthew and I found out that Blake had something wrong with his heart when he suddenly was really poorly on 30th September 2022.   “We took him to Chesterfield Hospital to be seen and Matthew and I were told he had...
Nick Buckley: 125 miles for CHSF

Nick Buckley: 125 miles for CHSF

After his daughter was born with CHD, heart dad Nick decided to take on the awesome challenge of walking 125 miles for the 1 in 125 born with a heart defect. At first, he thought he’d be walking along – but in April he completed his challenge with an army...
Albie’s story

Albie’s story

written by mum, Abigail “This is Albie. He is 6 and a half months old. At his 8 week check up, they discovered that he had a heart murmur. “After being referred to Leeds General Infirmary at four months old, we learnt that Albie had Tetralogy of Fallot and...