Alfie’s Story

Alfie’s Story

17-year old Alfie’s family found out he had congenital heart disease (CHD) when he was just 2 months old. Following multiple procedures, Alfie is now enjoying life both as a teenager and keen LUFC supporter, as mum Kirsty tells us: “Alfie was only 7 weeks old when we...
Zak’s Story

Zak’s Story

We know it’s vitally important to share your journeys with congenital heart disease. Your experiences are both reassuring and educational for other heart families, and provide vital awareness for others. 3-year old Zak’s condition was found by complete coincidence,...
Alessia Mae’s Story

Alessia Mae’s Story

Alessia Mae is fast approaching her first birthday, but at birth she was sent urgently to her local hospital as she was critically low on oxygen and had open heart surgery at just a day old in Leeds. Mum Tierney tells the full story… “Alessia Mae was born on the 21st...
Finley’s Story

Finley’s Story

Finley Kenneth Peirson was born in July 2022 and was rushed straight to Scarborough’s Special Care Baby Unit with a suspected infection. Over the weeks that followed, Finley deteriorated and was put into an incubator. One of the doctors detected a heart murmur and...
Amy’s Story

Amy’s Story

Amy’s daughter received open heart surgery at just 11 weeks old. Amy’s little one is now three years old and Amy tells us all about her daughter’s CHD journey to date. Amy is also pregnant and knows her baby is already a heart warrior too. Amy, known online as...
Beau’s Story #BabyLossAwarenessWeek

Beau’s Story #BabyLossAwarenessWeek

written by mum Tilly-May “Back in February of this year (2024) we went for our 20-week anomaly scan at Bassetlaw. Unfortunately, a clear view of Beau’s heart could not be seen so we were sent to Leeds General Infirmary so the cardiology team there (who are one of the...