“I will never forget the support that the CHSF gave my family, and I am determined to give something back whenever I can.”
Dedicated supporter JON is tackling four challenging fundraising events this year for CHSF: the Sherwood Forest New Year 10k, Sheffield Half Marathon, Yorkshire Three Peaks, and Midlands Tough Mudder!
In memory of his first child, diagnosed with hypoplastic left heart syndrome in 2011, Jon is running, walking, and getting muddy. His son Jacob was born with a heart murmur two years later, and is now 10 years old, thanks to care from Leeds Congenital Heart Unit.
Jon told us a bit more about the reasons why he wanted to fundraise for CHSF this year…
“In 2011 my now ex-partner was pregnant with our first child, and our 20 week scan raised some concerns about the baby’s heart growth/development. We were referred to the heart unit in Leeds for a further scan.
“Unfortunately, it was discovered that the baby was suffering from hypoplastic left heart syndrome and would have been very poorly if we went full term. We made the very difficult decision to terminate the pregnancy, but due to the late stage my ex-partner had to deliver the baby still born. It was a horrible time for everyone but the staff at Leeds, on behalf of the CHSF were absolutely amazing and offered us brilliant support to help us through.
“Due to this history, when my son Jacob was born in 2013 the Leeds Congenital Heart Unit offered us extra scans throughout the pregnancy, to give some reassurance and again the staff and support was fantastic. Jacob was also found to have a small heart murmur when he was younger and the investigations around this were quite distressing as they brought back some troubling memories. But again, staff at Children’s Heart Surgery Fund really looked after us all. Jacob is now 10yrs old and is healthy with the heart murmur causing him no issues at all, which is a massive weight off.
“Obviously, this event was a major one in my life. It has had a great effect on me, from which I have tried to turn negative effects to positive ones over the past decade.
“I will never forget the support that the CHSF gave my family, and I am determined to give something back whenever I can throughout the rest of my life. Children’s Heart surgery Fund will always be my number one choice to raise money for when I get the opportunity to. So when I decided to test myself with all these events I have booked, it was a no-brainer for me to try and help a good cause at the same time.”
“Due to this history, when my son Jacob was born in 2013 the Leeds Congenital Heart Unit offered us extra scans throughout the pregnancy, to give some reassurance and again the staff and support was fantastic. Jacob was also found to have a small heart murmur when he was younger and the investigations around this were quite distressing as they brought back some troubling memories. But again, staff at CHSF really looked after us all. Jacob is now 10yrs old and is healthy with the heart murmur causing him no issues at all, which is a massive weight off.
“Obviously, this event was a major one in my life. It has had a great effect on me, from which I have tried to turn negative effects to positive ones over the past decade.
“I will never forget the support that the CHSF gave my family, and I am determined to give something back whenever I can throughout the rest of my life. Children’s Heart surgery Fund will always be my number one choice to raise money for when I get the opportunity to. So when I decided to test myself with all these events I have booked, it was a no-brainer for me to try and help a good cause at the same time.”
Jon was due to kick off his fundraising in December with the Percy Pud 10K in Sheffield, but it was called off due to snow. Jon still received his celebratory ‘christmas pudding’ but he isn’t keen on the festive dessert so donated it to a local elderly charity!
With over £1,100 already in the pot, Jon is set to have a fab fundraising year for CHSF and we are so grateful. Thank you, Jon!
Inspired? Choose your 2024 challenge!
Do something great this year and choose your challenge to raise funds for our world-class heart unit, it’s amazing patients and their families.
Rope in the whole family for the 2023 Abseil
This year's abseil will be a family affair as heart hero Danny has roped his mum Gillian into daring the drop yet again to raise money for CHSF! After Gillian's jump out of a plane and the pair taking part in our abseil in 2019, Danny and his mum tell us a bit more...
Finley’s Christening
Tamra, mum to heart warrior Finley, asked for donations at Finley's Christening as a way of giving back to CHSF... "At seven months old, it was time to get Finley Christened. We wanted to put an extra special touch on his day by including Children's Heart Surgery Fund...
Fundraiser of the Month: Ashley’s Tuck Shop
"While our time at Leeds was extremely difficult, it was made so much easier through the help of Children’s Heart Surgery Fund." Ashley is mum to heart warrior Autumn, who had heart surgery at the Leeds Congenital Heart Unit when she was just 13 hours old. 16 months...
Heart mum Sarah is daring the drop for her 50th Birthday
"This year, I am doing the abseil for CHSF to celebrate my 50th Birthday and my daughter Charlotte’s 10th Heart Day!"Our daughter, Charlotte, was diagnosed with an atrial septal defect (ASD) just after her first birthday in 2012. We first found out she had a problem...
Fundraiser of the Month: Wheelie Bin Cold Dip Challenge
If you think the last few months have BIN cold, spare a thought for Bradford brothers Matthew, Andrew and Jonathan who took a dip in a wheelie bin full of ice-cold water throughout the month of January! After his daughter Lauren had open heart surgery 10 years ago,...
Easter Family Day
We invite young cardiac patients and their parents/carers to join us for this free Easter social event. Meet CHSF’s Family Support workers, chat with the fundraising team, and get to know other families in the Children’s Heart Surgery Fund community. With fun...





