“I will never forget the support that the CHSF gave my family, and I am determined to give something back whenever I can.”
Dedicated supporter JON is tackling four challenging fundraising events this year for CHSF: the Sherwood Forest New Year 10k, Sheffield Half Marathon, Yorkshire Three Peaks, and Midlands Tough Mudder!
In memory of his first child, diagnosed with hypoplastic left heart syndrome in 2011, Jon is running, walking, and getting muddy. His son Jacob was born with a heart murmur two years later, and is now 10 years old, thanks to care from Leeds Congenital Heart Unit.
Jon told us a bit more about the reasons why he wanted to fundraise for CHSF this year…
“In 2011 my now ex-partner was pregnant with our first child, and our 20 week scan raised some concerns about the baby’s heart growth/development. We were referred to the heart unit in Leeds for a further scan.
“Unfortunately, it was discovered that the baby was suffering from hypoplastic left heart syndrome and would have been very poorly if we went full term. We made the very difficult decision to terminate the pregnancy, but due to the late stage my ex-partner had to deliver the baby still born. It was a horrible time for everyone but the staff at Leeds, on behalf of the CHSF were absolutely amazing and offered us brilliant support to help us through.
“Due to this history, when my son Jacob was born in 2013 the Leeds Congenital Heart Unit offered us extra scans throughout the pregnancy, to give some reassurance and again the staff and support was fantastic. Jacob was also found to have a small heart murmur when he was younger and the investigations around this were quite distressing as they brought back some troubling memories. But again, staff at Children’s Heart Surgery Fund really looked after us all. Jacob is now 10yrs old and is healthy with the heart murmur causing him no issues at all, which is a massive weight off.
“Obviously, this event was a major one in my life. It has had a great effect on me, from which I have tried to turn negative effects to positive ones over the past decade.
“I will never forget the support that the CHSF gave my family, and I am determined to give something back whenever I can throughout the rest of my life. Children’s Heart surgery Fund will always be my number one choice to raise money for when I get the opportunity to. So when I decided to test myself with all these events I have booked, it was a no-brainer for me to try and help a good cause at the same time.”
“Due to this history, when my son Jacob was born in 2013 the Leeds Congenital Heart Unit offered us extra scans throughout the pregnancy, to give some reassurance and again the staff and support was fantastic. Jacob was also found to have a small heart murmur when he was younger and the investigations around this were quite distressing as they brought back some troubling memories. But again, staff at CHSF really looked after us all. Jacob is now 10yrs old and is healthy with the heart murmur causing him no issues at all, which is a massive weight off.

“Obviously, this event was a major one in my life. It has had a great effect on me, from which I have tried to turn negative effects to positive ones over the past decade.
“I will never forget the support that the CHSF gave my family, and I am determined to give something back whenever I can throughout the rest of my life. Children’s Heart surgery Fund will always be my number one choice to raise money for when I get the opportunity to. So when I decided to test myself with all these events I have booked, it was a no-brainer for me to try and help a good cause at the same time.”

Jon was due to kick off his fundraising in December with the Percy Pud 10K in Sheffield, but it was called off due to snow. Jon still received his celebratory ‘christmas pudding’ but he isn’t keen on the festive dessert so donated it to a local elderly charity!
With over £1,100 already in the pot, Jon is set to have a fab fundraising year for CHSF and we are so grateful. Thank you, Jon!
Inspired? Choose your 2024 challenge!
Do something great this year and choose your challenge to raise funds for our world-class heart unit, it’s amazing patients and their families.

Board Game Night
A night for our young people to have fun, play games and make peer connections!When? Thursday 20th November 2025 Where? Community Space, Wellington Place [Google Maps] Time: 6pm - 9pm Who? CHD Patients (aged 12+) + bring a friend!Join the CHSF team for an exciting...
Paint & Sip
Sign up for our new event 'Paint & Sip' this October Half TermWhen? Monday 27th October 2025 Where? HEART: Headingley Enterprise & Arts Centre [Google Maps] Time: 5pm - 7pm Who? CHD Patients (aged 13+)Join the CHSF team for an exciting evening at our first...
Nick Buckley: 125 miles for CHSF
After his daughter was born with CHD, heart dad Nick decided to take on the awesome challenge of walking 125 miles for the 1 in 125 born with a heart defect. At first, he thought he'd be walking along - but in April he completed his challenge with an army of friends...
Youth Day: August 2025
Calling all 13-16 year olds!Sign up for our Youth Day this summerWhen? Tuesday 12th August 2025 Where? Lineham Farm, Leeds [Google Maps] Time: 9:30am - 3:30pm (lunch included!)Join the CHSF team for an exciting day at Lineham Farm this summer! Meet other young people...
#TeamCHSF Dragon Boat Challenge 2025
On Saturday 12th July, the CHSF team will be competing in a Dragon Boat Race - and we'd love your support! Organised by the Rotary Club of Wakefield Chantry and Normanton, it’s a fun day for the whole family. #TeamCHSF will complete against 40 teams from local...
Running for Ruben – Laurie’s 5th Great North Run
Heart hero Ruben was born in 2019 with coarctation of the aorta. He had open heart surgery at just 3 days old, but mum Laurie Higgins says he is now a ‘happy and healthy’ 6 year old thanks to the Leeds Congenital Heart Unit team. Laurie tells us why she has chosen to...