“I will never forget the support that the CHSF gave my family, and I am determined to give something back whenever I can.”
Dedicated supporter JON is tackling four challenging fundraising events this year for CHSF: the Sherwood Forest New Year 10k, Sheffield Half Marathon, Yorkshire Three Peaks, and Midlands Tough Mudder!
In memory of his first child, diagnosed with hypoplastic left heart syndrome in 2011, Jon is running, walking, and getting muddy. His son Jacob was born with a heart murmur two years later, and is now 10 years old, thanks to care from Leeds Congenital Heart Unit.
Jon told us a bit more about the reasons why he wanted to fundraise for CHSF this year…
“In 2011 my now ex-partner was pregnant with our first child, and our 20 week scan raised some concerns about the baby’s heart growth/development. We were referred to the heart unit in Leeds for a further scan.
“Unfortunately, it was discovered that the baby was suffering from hypoplastic left heart syndrome and would have been very poorly if we went full term. We made the very difficult decision to terminate the pregnancy, but due to the late stage my ex-partner had to deliver the baby still born. It was a horrible time for everyone but the staff at Leeds, on behalf of the CHSF were absolutely amazing and offered us brilliant support to help us through.
“Due to this history, when my son Jacob was born in 2013 the Leeds Congenital Heart Unit offered us extra scans throughout the pregnancy, to give some reassurance and again the staff and support was fantastic. Jacob was also found to have a small heart murmur when he was younger and the investigations around this were quite distressing as they brought back some troubling memories. But again, staff at Children’s Heart Surgery Fund really looked after us all. Jacob is now 10yrs old and is healthy with the heart murmur causing him no issues at all, which is a massive weight off.
“Obviously, this event was a major one in my life. It has had a great effect on me, from which I have tried to turn negative effects to positive ones over the past decade.
“I will never forget the support that the CHSF gave my family, and I am determined to give something back whenever I can throughout the rest of my life. Children’s Heart surgery Fund will always be my number one choice to raise money for when I get the opportunity to. So when I decided to test myself with all these events I have booked, it was a no-brainer for me to try and help a good cause at the same time.”
“Due to this history, when my son Jacob was born in 2013 the Leeds Congenital Heart Unit offered us extra scans throughout the pregnancy, to give some reassurance and again the staff and support was fantastic. Jacob was also found to have a small heart murmur when he was younger and the investigations around this were quite distressing as they brought back some troubling memories. But again, staff at CHSF really looked after us all. Jacob is now 10yrs old and is healthy with the heart murmur causing him no issues at all, which is a massive weight off.

“Obviously, this event was a major one in my life. It has had a great effect on me, from which I have tried to turn negative effects to positive ones over the past decade.
“I will never forget the support that the CHSF gave my family, and I am determined to give something back whenever I can throughout the rest of my life. Children’s Heart surgery Fund will always be my number one choice to raise money for when I get the opportunity to. So when I decided to test myself with all these events I have booked, it was a no-brainer for me to try and help a good cause at the same time.”

Jon was due to kick off his fundraising in December with the Percy Pud 10K in Sheffield, but it was called off due to snow. Jon still received his celebratory ‘christmas pudding’ but he isn’t keen on the festive dessert so donated it to a local elderly charity!
With over £1,100 already in the pot, Jon is set to have a fab fundraising year for CHSF and we are so grateful. Thank you, Jon!
Inspired? Choose your 2024 challenge!
Do something great this year and choose your challenge to raise funds for our world-class heart unit, it’s amazing patients and their families.

Katie Bear’s Picnic
“If you go down to the woods today…”Meet us for a summer’s picnic with Katie Bear and all her friends.Pack up your picnic baskets and grab your favourite teddy bear - Katie Bear is inviting you and your family for a fun-filled day at the park! Bring your Katie Bear or...
15 amazing heart stories to round-up Heart Month
You not only raised significant donations for CHSF in and around February for Heart Month, but with your help we communicated our cause loud and clear to every corner of the region through your stories! Here’s a round-up of just some of the blogs and local news which...
Grant’s Jump for Joseph
CHSF supporter Grant Houldsworth is dad to heart hero Joseph, and is taking part in our 15,000ft Skydive to thank "all the people who played a part in saving my son’s life". When Joseph was a week old, the family found out he had Coarctation of the Aorta and two...
Luca’s Story
When Luca was born, mum Emma and dad Michael discovered Luca had a very loud heart murmur. The day after, they were transferred from Jimmy’s to the Leeds Children’s Hospital for a heart scan. It was then when they received the congenital heart disease (CHD) diagnosis...
Running for a Reason: Louise
Bradford-based adult patient Louise McCormick received open heart surgery aged 7 at Killingbeck Hospital. Now 41, Louise celebrated her 40th year by completing an enviable set of running fundraisers for CHSF in 2024. She isn’t taking her foot of the pedal this year...
Manchester Half Marathon
About Manchester Half Marathon Sunday 12th October 2025 Registration fee: £60 FREE Fundraising pledge: £550 The Manchester Half is a 13.1 mile challenge that takes place every October, starting and finishing by Old Trafford. It is easily the biggest half marathon in...