We’re proud to present the premiere of our brand new video featuring heart hero Ruby Varley.

Ruby was born with a condition called Tetralogy of Fallot, which means she was born with defects in four parts of her heart. Ruby has undergone three life-saving open heart surgeries at the Leeds Congenital Heart Unit, to date.

We would like to say a huge thank you to Ruby and whole Varley family for bravely sharing their congenital heart journey so far.

Feedback from our heart families tells us that sharing stories helps other patients and families dealing with a diagnosis of CHD to realise they are not alone and that there is support available from CHSF.

Ruby is just one of the thousands of babies, children and adults living with congenital heart disease in our region.

Our charity exists to provide the funding and resources needed to care for a patient’s heart, mind, family and future. By giving a regular donation to CHSF, you enable us to plan for the future while saving lives today.

MORE REAL STORIES

Maisy

Maisy

Maisy was diagnosed with Down syndrome shortly after birth, and at just 7 months old, she had open heart surgery at the Leeds Congenital Heart Unit. Her mum Laura has kindly shared their journey - from diagnosis, and the care Maisy received, to the support they’ve had...

Blake

Blake

Blake's mum, Chelsea, said: “My partner Matthew and I found out that Blake had something wrong with his heart when he suddenly was really poorly on 30th September 2022.   “We took him to Chesterfield Hospital to be seen and Matthew and I were told he had sepsis,...

Albie’s story

Albie’s story

written by mum, Abigail"This is Albie. He is 6 and a half months old. At his 8 week check up, they discovered that he had a heart murmur. "After being referred to Leeds General Infirmary at four months old, we learnt that Albie had Tetralogy of Fallot and will need...