We’re proud to present the premiere of our brand new video featuring heart hero Ruby Varley.
Ruby was born with a condition called Tetralogy of Fallot, which means she was born with defects in four parts of her heart. Ruby has undergone three life-saving open heart surgeries at the Leeds Congenital Heart Unit, to date.
We would like to say a huge thank you to Ruby and whole Varley family for bravely sharing their congenital heart journey so far.
Feedback from our heart families tells us that sharing stories helps other patients and families dealing with a diagnosis of CHD to realise they are not alone and that there is support available from CHSF.
Ruby is just one of the thousands of babies, children and adults living with congenital heart disease in our region.
Our charity exists to provide the funding and resources needed to care for a patient’s heart, mind, family and future. By giving a regular donation to CHSF, you enable us to plan for the future while saving lives today.
MORE REAL STORIES
Lily Doyle
Lily's story, told by dad, Richard "On the 10th May 1990 our second child, Lily Doyle, was born. She was quite frail and was sick after most feeds, but in our limited experience as parents (one other child at 18 months old) this was quite normal." This continued for...
Toy MRI for MRI Research
With your help we have funded some special toy MRI equipment to help young patients. MRI research nurse Ruth Foley tells this very special “Because of You” story! Meet James! James is 6 years old and has Tetralogy of Fallot. Read his backstory here. James came to...
James Noonan
From: Leeds Mum: Claire CHD: Tetralogy of Fallot James was diagnosed with Tetralogy of Fallot at our 20 week scan. At 4 days old James was ready to have his tiny heart stented and he did not have a name. So before he went for his procedure we named him James. Dr...