SHARE YOUR STORY
Children’s Heart Surgery Fund exists to support local heart warriors and their families. There is no better way to explain our charity than using a powerful story – like yours.
Please share your experiences to help others realise they are not alone, and spread awareness of congenital heart disease and the pioneering work of the Leeds Congenital Heart Unit.
We promise to use your story to positively promote CHSF’s cause across the wider region.
To share your story, fill in the information below, and we will be in touch for any further details.
REAL STORIES
Warrior Wednesday: Abel
"The support we received from CHSF as well as all the Leeds Congenital Heart Unit staff meant so much to us. We are truly grateful to this wonderful charity."written by mum Jessica Our son Abel was diagnosed with Tetralogy of Fallot after our 20-week anomaly scan...
Wear red for REGGIE
"Without Children’s Heart Surgery Fund, Reggie wouldn't be here." Michelle, Reggie's mumWritten by Reggie's mum, Michelle Reggie was born on the 1st September 2016 with a palliative congenital heart disease called hypoplastic left heart syndrome. Although you might...
In memory of Sian Firth
written by Sian's sister, Rachael My son Samuel was born on 30th October 2014 in our local hospital. It was clear straight away there were complications, but no one was sure what they were. Following various tests, he was transported later that day to the...
22q Awareness Month: Sophia’s Story
November is 22q11 Deletion Syndrome awareness month. Also known as DiGeorge syndrome, this syndrome is one of the most common reasons for cardiac problems in babies. The condition is rare and before having daughter Sophia, heart mum Charlotte had never heard of the...
Family story: Chelsea, Matthew & baby Blake
"CHSF has helped us so much. Thank you for everything you have done for us. It's really helped having the extra support at a such hard time."Written by heart mum, Chelsea Machon My partner Matthew and I found out that Blake had something wrong with his heart when he...
Warrior Wednesday: Issac
"When we got to Leeds it was very emotional, I just remember most of it being a blur. We would wander around trying to distract ourselves, watching this tiny little boy sleep without a care in the world." Heart warrior, Issac's CHD wasn't detected until after he was...