SHARE YOUR STORY

Children’s Heart Surgery Fund exists to support local heart warriors and their families. There is no better way to explain our charity than using a powerful story – like yours.

Please share your experiences to help others realise they are not alone, and spread awareness of congenital heart disease and the pioneering work of the Leeds Congenital Heart Unit.

We promise to use your story to positively promote CHSF’s cause across the wider region.

To share your story, fill in the information below, and we will be in touch for any further details.

REAL STORIES

Blake

Blake

Blake's mum, Chelsea, said: “My partner Matthew and I found out that Blake had something wrong with his heart when he suddenly was really poorly on 30th September 2022.   “We took him to Chesterfield Hospital to be seen and Matthew and I were told he had sepsis,...

Albie’s story

Albie’s story

written by mum, Abigail"This is Albie. He is 6 and a half months old. At his 8 week check up, they discovered that he had a heart murmur. "After being referred to Leeds General Infirmary at four months old, we learnt that Albie had Tetralogy of Fallot and will need...

Bonnie

Bonnie

Bonnie is two years old and was born with Atrial septal defect (ASD) and Ventricular septal defect (VSD) which were surgically repaired in Leeds at age 4 months. She has just celebrated her second heart day on 4th May! Mum Charleigh tells us about Bonnie's CHD journey...

Aria’s Story

Aria’s Story

8-year-old Aria was born with serious congenital heart conditions - coarctation of the aorta and aortic stenosis. She required open heart surgery at just 3 days old but it had to be delayed as she developed sepsis. Mum Jodie picks up the story, including their...

Luca’s Story

Luca’s Story

The awesome team at Enterprise Mobility all got behind their colleague Francesca this February to celebrate Wear Red Day. Francesca's son Luca was born with congenital heart defects and needed life-saving open heart surgery at just one week old.Francesca said: “We...