SHARE YOUR STORY
Children’s Heart Surgery Fund exists to support local heart warriors and their families. There is no better way to explain our charity than using a powerful story – like yours.
Please share your experiences to help others realise they are not alone, and spread awareness of congenital heart disease and the pioneering work of the Leeds Congenital Heart Unit.
We promise to use your story to positively promote CHSF’s cause across the wider region.
To share your story, fill in the information below, and we will be in touch for any further details.
REAL STORIES
Amy’s Story
Amy’s daughter received open heart surgery at just 11 weeks old. Amy's little one is now three years old and Amy tells us all about her daughter’s CHD journey to date. Amy is also pregnant and knows her baby is already a heart warrior too. Amy, known online as...
Beau’s Story #BabyLossAwarenessWeek
written by mum Tilly-May “Back in February of this year (2024) we went for our 20-week anomaly scan at Bassetlaw. Unfortunately, a clear view of Beau’s heart could not be seen so we were sent to Leeds General Infirmary so the cardiology team there (who are one of the...
Game4Hearts: Jessica
Jessica was born with a hole in her heart and had open heart surgery when she was 8 years old. During her time in hospital, gaming provided a huge relief, joy and distraction from her treatment and continues to play a big part in her life.In 2021, Jessica decided to...
Adalee
written by heart dad Jerome "Adalee was born 9 weeks early. All was going well, and she was soon transferred from York, where she was born, nearer to home in Scunthorpe. This is when they picked up on a slight heart murmur that would be monitored as she went on. "She...
Be a hero for…LOCHIE!
Lochie Blue is 2 years old and lives in Silsden near Keighley. He was diagnosed at 10 days old with Coarctation of the aorta, Ventricular septal defect (VSD) and Atrial septal defect (ASD). Lochie and his family will be at this year's Superhero Walk and we spoke to...
Jessica
Jessica Thomas, 13, excels at dancing after overcoming heart defect A teenager who had an eight-hour open heart operation at just six months old has been described as 'inspirational' after excelling as a dancer.Jessica doesn't let her heart condition hold her back....