SHARE YOUR STORY
Children’s Heart Surgery Fund exists to support local heart warriors and their families. There is no better way to explain our charity than using a powerful story – like yours.
Please share your experiences to help others realise they are not alone, and spread awareness of congenital heart disease and the pioneering work of the Leeds Congenital Heart Unit.
We promise to use your story to positively promote CHSF’s cause across the wider region.
To share your story, fill in the information below, and we will be in touch for any further details.
REAL STORIES
Olivia-Grace : World Down Syndrome Day
Did you know that 50% of babies born with Down Syndrome are also born with a congenital heart defect? Olivia-Grace had her first open heart surgery in 2021 aged six months old. Her mum Sharon told us all about the medical journey of heart hero daughter in this special...
Arthur
Before he was born, Arthur from Rotherham was diagnosed with Hypoplastic right heart syndrome and RV coronary dependant circulation. As told by mum, Jessica, read about Arthur's journey so far and how his family have been supported by CHSF since day one...Mum,...
Elijah
"HAPPY HEART MONTH HEART WARRIORS! "This month we stand united with our heart community. We share our stories in hope that someone going through the same gets some kind of reassurance they’re not alone. "This month we remember the highs and lows of being a heart...
Freddie
Last year, Freddie was the first child in the UK to undergo the innovative Yasui repair instead of the Fontan. Freddie was born with Hypoplastic Left Heart Syndrome and a large VSD and since 2016 had already overcome multiple heart surgeries. Mum Casey shares...
Sally
Sally's heart defect wasn't identified until after she was born and had open heart surgery at 18 days to correct her CHD. Doctors at the Leeds Congenital Heart Unit stated that without this operation, Sally wouldn't live past 6 months old. Now 21, Sally has already...
Jacob
Born at home in Kippax Leeds, Jacob's heart defect was detected in his first week of life after being admitted to Leeds Children's Hospital when he wasn't feeding well...Jacob's mum, Iona, said: "Jacob was born at home; everything was amazing and there was no sign...