SHARE YOUR STORY
Children’s Heart Surgery Fund exists to support local heart warriors and their families. There is no better way to explain our charity than using a powerful story – like yours.
Please share your experiences to help others realise they are not alone, and spread awareness of congenital heart disease and the pioneering work of the Leeds Congenital Heart Unit.
We promise to use your story to positively promote CHSF’s cause across the wider region.
To share your story, fill in the information below, and we will be in touch for any further details.
REAL STORIES
Daisy
Daisy's mum, Lucinda, said: "Our experience with congenital heart disease began at our 20 week scan. Having previously had a history of problems, we were told that baby would be checked very carefully. Upon her silence we immediately knew the sonographer had found...
Rebecca
Although Rebecca was born with the heart murmur, it wasn't until she was pregnant with her second child that her heart problems became more apparent...Rebecca said: "From birth I have had a heart condition. I was born with a heart murmur and was under the care of...
Louie
Louie's heart condition was detected at mum, Rebekkah's, 20 week scan. Louie would need life-saving surgery at Leeds after he was born and CHSF were there to ease the family's experience, providing vital assistance and comfort throughout Louie's treatment and...
Ebony
When Ebony was born in September 2023, her congenital heart defect went undetected until she started to get very poorly at just over a week old. Ebony was 'blue-lighted' from Scunthorpe to Leeds, where she had emergency heart surgery to save her life...Ebony's mum,...
Abraham
From being diagnosed with CHD at just 3 days old to overcoming multiple heart surgeries, Abraham is a true heart warrior! As well as funding our life-saving Heart Unit where he was treated, Children's Heart Surgery Fund have played a crucial role in supporting Abraham...
The Story of Gracie Mae Rengger
Written by mum Jessica Gracie was born on the 30th September 2022, weighing 6lb 4oz and this is where our journey began... Within 72 hours of Gracie being born and spending time on NICU, we found out Gracie had Tetralogy of fallot, VSD and an ASD, which is all...