At CHSF, we a so grateful witness countless inspiring stories of strength and resilience from children and their families as they navigate the challenges of congenital heart conditions.
Sonny is just one of those children…
Sonny’s dad, Adam, writes:
“Our son Sonny has tricuspid atresia.
“He is now 8 and had his Fontan procedure on 19th May of this year.
“Thankfully Sonny made a very good recovery and was able to leave hospital two weeks later. He has continued recovering well.
“On the 2nd September we went to Hutfest which is a running event. Sonny entered the children’s fun run and managed to complete the 1 mile distance!
“This was a huge milestone for Sonny. Prior to his surgery, he struggled to walk up the stairs in our house without getting out of breath.
“Me and my wife, Caroline, are forever grateful to all the staff on Ward L51, especially to Miss Carin Van Doorn who carried out the procedure.
“Finally thank you to Children’s Heart Surgery Fund who helped us massively with the accommodation during the early days of surgery, plus being there on the ward regularly with gifts and entertainment.
“We just wanted to say a big thank you!”
We’re sure you’ll join us in celebrating Sonny’s extraordinary milestone, made possible by our amazing Leeds Congenital Heart Unit and the generous contributions of our CHSF supporters.
Well done, Sonny. Always keep going for gold!


Louie
Louie’s journey through complex heart surgery has been nothing short of extraordinary. In this blog, Louie's mum Emily shares the story of their time in hospital, the incredible care they received and the strength their family found through the toughest of times. “On...
Support for families: June 2025
"As we reach the halfway point of the year, we wanted to take a moment to share what the Family Support Team has achieved so far in 2025. "Each quarter, we reflect on our progress to help everyone understand the impact we've made. "This update gives a picture of our...
Maisy
Maisy was diagnosed with Down syndrome shortly after birth, and at just 7 months old, she had open heart surgery at the Leeds Congenital Heart Unit. Her mum Laura has kindly shared their journey - from diagnosis, and the care Maisy received, to the support they’ve had...