Born on Christmas Eve in Huddersfield with a congenital heart defect, Catherine’s journey with CHD began in a time before family accommodation.
Catherine’s mum Deborah vividly recalls the quirks of the old nurses’ home, cold and eerie where only mothers were allowed to stay…
Deborah said:
Our daughter Catherine was born on Christmas Eve in Huddersfield and was admitted to Killingbeck Hospital on Christmas Day 1978 after being diagnosed with a congenital heart defect, Transposition of the Great Arteries (TGA). She had her first procedure on Boxing Day.
Our stay at Killingbeck was long before ‘The Bungalow’ or any family accommodation was built, and long before there was a paediatric intensive care unit.
Accommodation at the time was for mums only and was in the old nurses home. I remember it well – it was cold, dismal and creepy.
I used to push Catherine down to the staff canteen in her big old Silver Cross Pram when I needed a meal.
Catherine’s first open heart surgery was at 10 months old and her second was three years later.
Before CHSF-funded accommodation, only mums were allowed to stay in the Old Nurse’s Home at Killingbeck
Both operations were carried out by CHSF’s founder, the amazing Mr Duncan Walker, whom we will be eternally grateful.
Dr G Williams was Catherine’s Cardiologist until she was transferred to the care of Dr Dickinson. Upon reaching 16, Catherine was transferred back to the care of Dr Williams.
Catherine is still under the excellent care of Leeds and CHSF and has recently attend outpatients.
Catherine will be 45 years old this Christmas Eve.
“Accommodation at the time was for mums only and was in the old nurses home. I remember it well – it was cold, dismal and creepy.”
Catherine celebrates her 45th birthday this Christmas Eve thanks to the life-saving work of the heart unit in Leeds.
Catherine told us…
The Leeds Congenital Heart Unit have supported me for 45 years now and will continue to do so. I have undergone two open heart surgeries and I attend yearly reviews and examinations.
I also received amazing support from the Fetal Cardiologists that enabled me to have two amazing daughters. I live with an Implantable Cardiac Defibrillator (ICD) with further surgery due in the next couple of months.
What is an ICD? An ICD is a small device which can treat people with dangerously abnormal heart rhythms. It sends electrical pulses to regulate abnormal heart rhythms, especially those that could be dangerous and cause a cardiac arrest.
Despite these challenges I am eternally grateful to the team at Leeds for the fulfilling life I have. I have two degrees, work full time, engage in volunteering and enjoy holidaying and spending time with family and friends.
I experienced a set back last year, after suffering two strokes and a TIA (transient ischaemic attack/”mini stroke”). My husband, two daughters and parents were amazing and so supportive. As my daughters have grown older they have taken more of an interest in my medical history and helped me through my recovery.
I am so extremely proud of my daughters, with my eldest Grace in her 2nd year of an Adult Nursing degree and my youngest daughter Eva in her first year of college studying psychology, sociology, and criminology.
Please help us right now to continue giving a vital home-from-home to heart families when they need it most.
Since our charity was founded in 1988, we estmate that around 10,000 families have stayed in CHSF-funded accommodation.
13 babies are diagnosed with congenital heart disease in the UK every day. This year alone we have supported double the families that we did in 2022.
We need to raise at least £10,000 every year to fund CHSF accommodation.
Please donate what you can to help us reach our goal and ensure heart families like Catherine’s can #StayAnotherDay.
If you can go the extra mile (so heart parents don’t have to), please consider setting up a regular gift to CHSF to enable more families to #StayAnotherDay throughout the year!
Christmas Wishes: INR Machine Feedback
Watch our full 2024 Christmas appeal video here.Thanks to your amazing fundraising, Children’s Heart Surgery Fund (CHSF) are able to purchase INR home testing kits for heart patients of all ages. The Leeds Warfarin Clinic ran an anonymous survey earlier this year to...
Christmas Wishes: Appeal Video Now Live!
Proudly presenting our “Christmas Wishes” 2024 appeal video!This festive season, Children’s Heart Surgery Fund (CHSF) is proud to unveil our brand-new video for the “CHSF Christmas Wishes” appeal! Inspired by the classic ‘12 Days of Christmas’, this fun and festive...
Cot mobiles, mirrors and coloured paper for L51 Play Team
The Ward 51 Play Specialist team wanted to thank you for helping fund a set of cot mobiles and mirrors to help with play and stimulation amongst the youngest of patients. They also received sets of coloured paper for use in bunting, reward charts and making mobiles...
Kardia devices and reward stickers for Calderdale
Thanks to your donations, CHSF have funded a series of regional children’s congenital cardiac nurses (CCNS) in local hospitals in recent years. One such CCNS is Paula Cowgill, based at the Calderdale Royal in Halifax, who has a special thank you for CHSF...
Play mats, chairs and food pouches for High Risk clinic
Thanks to your donations, the Physiotherapy and Speech and language therapy (SALT) teams have received some new equipment and resources to help with clinic appointments and ongoing care. A special play mat and chairs, along with special food pouches are being used for...
Vital new monitor part of ‘revolutionary MRI process’ for newborn babies
Vital new monitor part of ‘revolutionary MRI process’ for newborn babies. £45,000 has been donated to Children’s Heart Surgery Fund (CHSF) as part of the J9 Advisory £100,000 Charity Challenge to enable the purchase of life-saving MRI monitoring equipment. The monitor...