Heart hero Harry had life-saving open heart surgery at Leeds, in October this year.
From Harrogate, mum Shawney tells us a bit more about the brilliant work of the Leeds Congenital Heart Unit and how their family were looked after in CHSF-funded accommodation while Harry was being treated, meaning she could always be a stones-throw away…
Shawney said:
“Harry had his surgery on the 23th October 2023 to close his ventricular septal defect (VSD) and atrial septal defect (ASD).
“Both were detected after a murmur was picked up at birth.
“Harry spent some time in the Paediatric Intensive Care Unit (PICU), followed by HDU (High Dependency Unit) before being moved onto the children’s heart ward (L51).
“He was home after just 7 days.
About Ventricular Septal Defect
About Atrial Septal Defect
“We stayed for three nights in Brotherton Wing. It made it so much easier not having to be away from Harry.”
“We stayed for two nights in a room while Harry was on PICU, then we stayed for three nights in CHSF-funded rooms on the Brotherton Wing.
“It made it so much easier not having to be away from Harry after his surgery, and also meant I could continue to feed Harry myself.
“It would just be a call when he was due, and I could just nip to the ward!
Harry at home after his surgery with his Katie Bear teddy and medal
“Every single person involved in Harry’s care over his stay were truly incredible.
“It was the most terrifying time of our lives but the amazing network of staff and support from other parents made it so much easier!
“We continue to have check-ups but fingers crossed everything is going well! Huge thank you to all involved.
Since our charity was founded in 1988, around 10,000 families have stayed in CHSF-funded accommodation.
13 babies are diagnosed with congenital heart disease in the UK every day. This year alone we have supported double the families that we did in 2022.
We need to raise at least £10,000 every year to fund CHSF accommodation.
Please donate what you can to help us reach our goal and ensure heart families just like Harry’s can #StayAnotherDay.
If you can go the extra mile (so heart parents don’t have to), please consider setting up a regular gift to CHSF to enable more families to #StayAnotherDay throughout the year!
CELEBRATE CHRISTMAS WITH CHSF
Have a festive flutter on the 2023 Christmas Raffle, or maybe you could buy a pack of Xmas cards. Want a challenge? You can Step Into Christmas by walking a marathon in December, or Jingle All the Way to 5K with Team CHSF!
The most wonderful time of the year is almost upon us again. Can you help us be there for heart warriors all year round?
Visit our Christmas page to see more ways you can support CHSF this festive season!
Be a hero for…LOCHIE!
Lochie Blue is 2 years old and lives in Silsden near Keighley. He was diagnosed at 10 days old with Coarctation of the aorta, Ventricular septal defect (VSD) and Atrial septal defect (ASD). Lochie and his family will be at this year's Superhero Walk and we spoke to...
Fundraiser of the Month: Family & Friends of Isaac Phoenix Davison
Isaac was born in November 2022 with a heart condition called Tetralogy of fallot. Mum Leanne, tells us a bit more about her son and the fundraising family and friends have been doing in his memory since Isaac sadly passed away in April last year.Leanne said: “Isaac...
Meet CHSF Youth Worker Lu!
Meet Lu, our incredible Family & Support Worker at Children’s Heart Surgery Fund! This 'International Youth Day', she tells us a bit more about her role at CHSF and the latest resource she's put together for our young people! “Hi! I’m Lu, the Family & Youth...
Jessica
Jessica Thomas, 13, excels at dancing after overcoming heart defect A teenager who had an eight-hour open heart operation at just six months old has been described as 'inspirational' after excelling as a dancer.Jessica doesn't let her heart condition hold her back....
Jingle Bell Drop: Festive Abseil
Dress in your festive best and descend 148ft this December!About FAQs Sign up🎶 Jingle bell, jingle bell, jingle bell... DROP! 🎶 Get into the festive spirit this December with CHSF by taking part in Jingle Bell Drop – our Christmas Abseil challenge. Dressed in...
Simon
Simon from Scunthorpe was born in the the early 80's with congenital heart disease. He was diagnosed with a heart murmur and a hole in his heart when he was six. But it wasn’t until a few years later, after developing an infection, that Simon, his family and doctors...