Support for families: March 2025

CHSF are there for every step of the CHD journey, from diagnosis right through to transition and adulthood.

In March 2025, our Family Support team had yet another busy month working to build empowered lives for families and patients across our region. We can only do this with your help, thank you for continuing to champion our cause.

Cardiac Cafe Leeds [SEN focus]

We held the March Cardiac Cafe in Leeds and invited families to come along to meet SENDIASS who provide the Leeds SEND information and advice support service.

We had a lovely morning at Interplay Theatre in Armley and some great conversations were had.

Photo: Mum chatting to the SENDIASS team with Lu

“Today’s event was really good. I had lots of questions about [my son’s] support at appointments etc. It was great talking through everything and trying to find solutions.”

Quarter 1 Feedback

“The staff members were so good, kind and supportive always there for us in our hard times, providing us with whatever we need.”

“The continuous help and constant hope. Someone always coming to check on me and the baby. And offering their services constantly.”

“We have appreciated everything you have supplied for us. The financial help is a massive help with travel etc. The Tesco vouchers are really good too.”

“The service really supported my mental wellbeing and allowed me to stop worrying about things like accommodation. I can honestly say if it wasn’t for [CHSF] and their support, I don’t know how I would have got through this traumatic experience.”

“They help the families out with every day things like toiletries, Tesco vouchers for weekly shopping – they even have got me a gym membership which has helped me a lot during as my daughter was admitted for few weeks. They have also arranged Family Fund which was very helpful for the family. All these meant a lot as being in hospital living away from home and my other child was hard. Lucy has helped me out with local map Leeds for my partner’s parents. They are very helpful, kind and listen to families and help in all possible ways.”

Quarter 1: Youth impact in numbers

54 young people worked with Jan – Mar 2025
14 completed the Youth Voice activity
3 young people supported with education
4 young people received inpatient 121 sessions
7 young people access Comfort & Care pack
16 young people supported with Transition
5 young people signposted to external services
3 young people supported with getting work placements
38 Youth Cards received

It’s only with the help of our incredible supporters that we can continue to be there for every family that needs us. Thank you.