“The support we received from CHSF as well as all the Leeds Congenital Heart Unit staff meant so much to us. We are truly grateful to this wonderful charity.“
written by mum Jessica
Our son Abel was diagnosed with Tetralogy of Fallot after our 20-week anomaly scan showed his heart had not formed correctly.
We then had regular scans at the LGI and he was delivered at 37 weeks.
Thankfully he was well and had good oxygen levels, so we were allowed home after two days.
Abel continued to have monthly heart echo’s up until his surgery in July 2022, at 13 months old.
Children’s Heart Surgery Fund were such a big help to me and my partner.
They provided us with accommodation in the hospital for three days during Abel’s stay in PICU. It was great peace of mind that we could both be close to him and that we could visit Abel at any time of the day.
The support we received from CHSF, as well as all the Leeds Congenital Heart Unit staff at Leeds Children’s Hospital (Ward L51) meant so much to us. We are truly grateful to this wonderful charity.
On #WarriorWednesday, we celebrate the amazing heart heroes we support in our region. We tell their stories to raise vital awareness of congenital heart disease and recognise the care of the Leeds Congenital Heart Unit.
Feedback from heart patients and families tells us your story will help others dealing with a diagnosis of CHD to realise they are not alone and that there is support available from CHSF.
If you would like to make a regular or one-off donation to help fund CHSF’s life-saving work, you can do so here. Thank you.
More from the blog…
Fundraiser of the Month: Lil Louie Big Heart
Jess and Callum, parents to heart warrior Louie, organised a Family Fun Day in August this year August. To raise even more funds for CHSF, friends decided to also incorporate a sponsored bike ride too!Jess told us a bit more about Louie’s story and how it inspired...
Because of Carin: Billy
As part of our Because of Carin campaign, celebrating the incredible career of Carin van Doorn, Billy’s family share their memories of her support. Carin performed two life-saving heart surgeries on Billy - and their words show just how much her care and dedication...
Because of Carin: Seth
Heart mum Charlotte found out at her 20-week scan that her little boy Seth had Transposition of the Great Arteries. Charlotte told us about Seth’s journey through treatment at the Leeds Congenital Heart Unit and how he is faring back home in Chesterfield.written by...