“The support we received from CHSF as well as all the Leeds Congenital Heart Unit staff meant so much to us. We are truly grateful to this wonderful charity.“
written by mum Jessica
Our son Abel was diagnosed with Tetralogy of Fallot after our 20-week anomaly scan showed his heart had not formed correctly.
We then had regular scans at the LGI and he was delivered at 37 weeks.
Thankfully he was well and had good oxygen levels, so we were allowed home after two days.
Abel continued to have monthly heart echo’s up until his surgery in July 2022, at 13 months old.
Children’s Heart Surgery Fund were such a big help to me and my partner.
They provided us with accommodation in the hospital for three days during Abel’s stay in PICU. It was great peace of mind that we could both be close to him and that we could visit Abel at any time of the day.
The support we received from CHSF, as well as all the Leeds Congenital Heart Unit staff at Leeds Children’s Hospital (Ward L51) meant so much to us. We are truly grateful to this wonderful charity.
On #WarriorWednesday, we celebrate the amazing heart heroes we support in our region. We tell their stories to raise vital awareness of congenital heart disease and recognise the care of the Leeds Congenital Heart Unit.
Feedback from heart patients and families tells us your story will help others dealing with a diagnosis of CHD to realise they are not alone and that there is support available from CHSF.
If you would like to make a regular or one-off donation to help fund CHSF’s life-saving work, you can do so here. Thank you.
More from the blog…
Sonny’s Amazing Mile
At CHSF, we a so grateful witness countless inspiring stories of strength and resilience from children and their families as they navigate the challenges of congenital heart conditions. Sonny is just one of those children…Sonny's dad, Adam, writes: “Our son Sonny has...
Finley
Finley's story written by mum, Tamra At 2:48pm on the 18th July 2022 our little boy, Finley Kenneth Peirson, was born. After 6 hours of labour, we were over the moon with him. However, at around 8pm his oxygen levels dropped, and he was rushed to Scarborough's...
Charlie
Charlie's story written by mum, Emma On the 5th May 2021, our family felt complete after our son Charlie was born in the LGI at Leeds. Everything went smoothly and we were so excited to maybe go home that day.All those hopes quickly went out of the window when...


