“The support we received from CHSF as well as all the Leeds Congenital Heart Unit staff meant so much to us. We are truly grateful to this wonderful charity.

written by mum Jessica

Our son Abel was diagnosed with Tetralogy of Fallot after our 20-week anomaly scan showed his heart had not formed correctly.

 

We then had regular scans at the LGI and he was delivered at 37 weeks.

 

Thankfully he was well and had good oxygen levels, so we were allowed home after two days.

 

Abel continued to have monthly heart echo’s up until his surgery in July 2022, at 13 months old.

Children’s Heart Surgery Fund were such a big help to me and my partner.

 

They provided us with accommodation in the hospital for three days during Abel’s stay in PICU. It was great peace of mind that we could both be close to him and that we could visit Abel at any time of the day.

 

The support we received from CHSF, as well as all the Leeds Congenital Heart Unit staff at Leeds Children’s Hospital (Ward L51) meant so much to us. We are truly grateful to this wonderful charity.

On #WarriorWednesday, we celebrate the amazing heart heroes we support in our region. We tell their stories to raise vital awareness of congenital heart disease and recognise the care of the Leeds Congenital Heart Unit.

Feedback from heart patients and families tells us your story will help others dealing with a diagnosis of CHD to realise they are not alone and that there is support available from CHSF.

If you would like to make a regular or one-off donation to help fund CHSF’s life-saving work, you can do so here. Thank you.

More from the blog…

Aria’s Story

Aria’s Story

8-year-old Aria was born with serious congenital heart conditions - coarctation of the aorta and aortic stenosis. She required open heart surgery at just 3 days old but it had to be delayed as she developed sepsis. Mum Jodie picks up the story, including their...

Luca’s Story

Luca’s Story

The awesome team at Enterprise Mobility all got behind their colleague Francesca this February to celebrate Wear Red Day. Francesca's son Luca was born with congenital heart defects and needed life-saving open heart surgery at just one week old.Francesca said: “We...