Finley Kenneth Peirson was born in July 2022 and was rushed straight to Scarborough’s Special Care Baby Unit with a suspected infection. Over the weeks that followed, Finley deteriorated and was put into an incubator.
One of the doctors detected a heart murmur and this was confirmed by one of the cardiologists. Finley and his parents were immediately blue-lighted to the Leeds Congenital Heart Unit (LCHU).
Finley was diagnosed with Supracardiac total anomalous pulmonary venous drainage (TAPVD) and required open heart surgery as soon as possible – his parents were told it would take place within days. Children’s Heart Surgery Fund (CHSF) supported Finley’s family throughout the 11 days that Finley was at the LCHU, even providing Finley’s mummy and daddy with accommodation within the hospital.
Mum Tamra said: “It was a godsend as I’d only had surgery myself, just days before and I was in a wheelchair and couldn’t walk, let alone drive and travel to and from Malton. As first-time parents, we never imagined anything like this to happen when thinking about having our baby boy.
“We owe so many people a massive thanks, especially Carin Van Doorn and her team for accomplishing the operation and saving our baby boy’s life. Multiple members of staff from all the CHSF wards looked after Finley for the 11 days he was in Leeds.”
“Wear Red Day is a very special day for us as a family, as it is to many other heart families. It gives us a special day to embrace what we’ve been through and to remind people they are not alone. Heart conditions are more common than most realise with 13 babies being diagnosed with a CHD every day – which means we should understand and learn about them. This day is about showing our heart warriors they should not hide their scars – they are part of who they are and they should celebrate that.
“Children’s Heart Surgery Fund gives us families a centre hub to connect with one another and support one another. Without CHSF raising funds and supporting the children’s cardiology department, we wouldn’t have vital equipment for our poorly children to help them survive.
“So please support them by raising as much money as possible so future poorly children can also thrive just like our little man Finley does now, today.”
Wear red in Feb for the thousands of children in our region like Finley!
Sign up to take part in Wear Red Day this February to raise vital awarenss of congenital heart disease, and life-saving funds for CHSF!
Simon
Simon from Scunthorpe was born in the the early 80's with congenital heart disease. He was diagnosed with a heart murmur and a hole in his heart when he was six. But it wasn’t until a few years later, after developing an infection, that Simon, his family and doctors...
Danny #ScarSelfie
Danny Hirst, 20, was born with a hole in his heart and had it repaired by open heart surgery in Leeds when he was 11. A year later, he had further open heart surgery to replace his aortic heart valve.Danny told us how he feels about his scar, and how life is treating...
Dairygold “Tour De Francis” 127 mile cycle
A cycling team of Dairygold colleagues are taking on the length of the Leeds Liverpool Canal this weekend to raise funds for CHSF. Their inspiration? Heart warrior, Francis! Named the “Tour De Francis” Dairygold Cycle Ride 2024, the team will cycle the 127 miles from...