Florence’s journey into the world of congenital heart disease began long before her family were ready for it.
What followed was a difficult mix of fear, medical decisions and tiny moments of hope that carried them through.
Mum Kelly, from Halifax, said:
“Florence’s journey began before we were ready. Hearing the words ‘congenital heart defect’ changes everything in a second. What were already challenging days became a nightmare filled with monitors, oxygen levels, medical language and decisions no parent ever imagines making. There were moments of fear and desperation that took our breath away. Watching our beautiful, small but mighty warrior fight. There was hope – we prayed and held on to hope from the beginning.
“From diagnosis through treatment, it has been a world of hospital corridors, specialists, waiting rooms and holding her tiny hand while she faced things far bigger than her. But it has also been a journey of resilience. Florence is stronger than we ever knew a human could be. She has taught us what courage really looks like.
“Children’s Heart Surgery Fund made us feel less alone. In a world that can feel isolating and overwhelming, they provided practical support, reassurance and a sense of community. We were part of a club no parent wants to be a part of, but their presence, compassion, kindness and thoughtfulness kept us going.
“Knowing there were people who understood the unique fear and strength of heart families made an enormous difference. They didn’t just support Florence, they supported us as parents who were trying to stay standing through it all.
Why should people support CHSF this Heart Month / Wear Red Day?
“I think it is so important that people support CHSF this Heart Month because behind every statistic is a child like Florence. A tiny chest with a fierce, determined heart.
“Supporting CHSF means supporting families like us at the worst time of our lives, in crisis, and reminding heart warriors that they are seen.
“Wearing red isn’t just symbolic it’s solidarity. It’s saying these children matter. Their fight matters. CHSF are an amazing charity that makes a REAL difference, and we are forever grateful to be part of this club.
“To other heart families: you are not alone. The fear, the exhaustion, the guilt, the love that feels almost unbearable, it’s all part of this journey. You are stronger than you think. Your child is stronger than you know. Take it one hour at a time, even minute by minute. Hold their hand. Let others hold yours when you need it the most. Reach out and keep talking. There is hope even in the hardest days.”
Wear red in Feb for the thousands of children in our region like Florence Dottie!
Sign up to take part in Wear Red Day this February to raise vital awareness of congenital heart disease, and life-saving funds for CHSF!
Donate online to our Wear Red Day 2026 JustGiving page
Donate by text: Text CHSFWRD (plus any amount up to 20) to 70085
(e.g. To give £5 text: CHSFWRD 5 to 70085)
Spread the word: Tell your friends, family, school or business all about our campaign – and how easy it is to sign up! Thank you.
Fundraiser of the Month: Hall and Varley Families
After six months of preparation and a whole lot of heart, the Hall and Varley families of Kippax Leeds put on a super Polar Express themed Christmas Party to raise funds for CHSF. Children were invited to attend in their pyjamas and the hosting families dressed as...
WEAR RED FOR EVIE
Heart warrior Evie is just one of the thousands of babies, children and adults living with congenital heart disease in our region who are supported by CHSF. Evie's mummy Chelsea has kindly told us all about their family's story so far and why they'll be wearing red...
Pip’s Turning 30: A whole year of fundraising!
Adult heart warrior Philippa wanted to make the last year of her twenties one to remember. She also wanted to use her big 30th birthday to raise funds for two charities very close to her heart. Today, on her 30th heart anniversary, Philippa tells us a bit more about...