Florence’s journey into the world of congenital heart disease began long before her family were ready for it.
What followed was a difficult mix of fear, medical decisions and tiny moments of hope that carried them through.
Mum Kelly, from Halifax, said:
“Florence’s journey began before we were ready. Hearing the words ‘congenital heart defect’ changes everything in a second. What were already challenging days became a nightmare filled with monitors, oxygen levels, medical language and decisions no parent ever imagines making. There were moments of fear and desperation that took our breath away. Watching our beautiful, small but mighty warrior fight. There was hope – we prayed and held on to hope from the beginning.
“From diagnosis through treatment, it has been a world of hospital corridors, specialists, waiting rooms and holding her tiny hand while she faced things far bigger than her. But it has also been a journey of resilience. Florence is stronger than we ever knew a human could be. She has taught us what courage really looks like.
“Children’s Heart Surgery Fund made us feel less alone. In a world that can feel isolating and overwhelming, they provided practical support, reassurance and a sense of community. We were part of a club no parent wants to be a part of, but their presence, compassion, kindness and thoughtfulness kept us going.
“Knowing there were people who understood the unique fear and strength of heart families made an enormous difference. They didn’t just support Florence, they supported us as parents who were trying to stay standing through it all.
Why should people support CHSF this Heart Month / Wear Red Day?
“I think it is so important that people support CHSF this Heart Month because behind every statistic is a child like Florence. A tiny chest with a fierce, determined heart.
“Supporting CHSF means supporting families like us at the worst time of our lives, in crisis, and reminding heart warriors that they are seen.
“Wearing red isn’t just symbolic it’s solidarity. It’s saying these children matter. Their fight matters. CHSF are an amazing charity that makes a REAL difference, and we are forever grateful to be part of this club.
“To other heart families: you are not alone. The fear, the exhaustion, the guilt, the love that feels almost unbearable, it’s all part of this journey. You are stronger than you think. Your child is stronger than you know. Take it one hour at a time, even minute by minute. Hold their hand. Let others hold yours when you need it the most. Reach out and keep talking. There is hope even in the hardest days.”
Wear red in Feb for the thousands of children in our region like Florence Dottie!
Sign up to take part in Wear Red Day this February to raise vital awareness of congenital heart disease, and life-saving funds for CHSF!
Donate online to our Wear Red Day 2026 JustGiving page
Donate by text: Text CHSFWRD (plus any amount up to 20) to 70085
(e.g. To give £5 text: CHSFWRD 5 to 70085)
Spread the word: Tell your friends, family, school or business all about our campaign – and how easy it is to sign up! Thank you.
#WarriorWednesday: George
On 1st April 2020, at her 20 week scan, mum Liane found out her baby, George, had a congenital heart defect. Now about to celebrate his 1st birthday, Liane tells us all about George's heart journey so far and how they have been supported by CHSF...Heart mum Liane...
#WarriorWednesday: Share your story
On #WarriorWednesday, we like to celebrate the amazing heart heroes we support in our region. Telling your story raises vital awareness of congenital heart disease and recognises the incredible care of the Leeds Congenital Heart Unit. Feedback from heart families...
Fundraiser of the Month: In memory of John Arthur Brooks
In Memory of Our Brave Little ManWritten by heart mum, Lindsay Brooks John Arthur Brooks was born at Leeds General Infirmary on 28th April 2008. We were given his CHD diagnosis prenatally at 27 weeks, and although his condition was complex we decided to continue with...