Olivia-Grace : World Down Syndrome Day

Olivia-Grace : World Down Syndrome Day

Did you know that 50% of babies born with Down Syndrome are also born with a congenital heart defect? Olivia-Grace had her first open heart surgery in 2021 aged six months old. Her mum Sharon told us all about the medical journey of heart hero daughter in this special...
Arthur

Arthur

Before he was born, Arthur from Rotherham was diagnosed with Hypoplastic right heart syndrome and RV coronary dependant circulation. As told by mum, Jessica, read about Arthur’s journey so far and how his family have been supported by CHSF since day one…...
Elijah

Elijah

“HAPPY HEART MONTH HEART WARRIORS! “This month we stand united with our heart community. We share our stories in hope that someone going through the same gets some kind of reassurance they’re not alone. “This month we remember the highs and lows of...
Freddie

Freddie

Last year, Freddie was the first child in the UK to undergo the innovative Yasui repair instead of the Fontan.  Freddie was born with Hypoplastic Left Heart Syndrome and a large VSD and since 2016 had already overcome multiple heart surgeries. Mum Casey shares...
Sally

Sally

Sally’s heart defect wasn’t identified until after she was born and had open heart surgery at 18 days to correct her CHD. Doctors at the Leeds Congenital Heart Unit stated that without this operation, Sally wouldn’t live past 6 months old. Now 21,...
Jacob

Jacob

Born at home in Kippax Leeds, Jacob’s heart defect was detected in his first week of life after being admitted to Leeds Children’s Hospital when he wasn’t feeding well… Jacob’s mum, Iona, said: “Jacob was born at home; everything...