22q Awareness Month: Sophia’s Story

22q Awareness Month: Sophia’s Story

November is 22q11 Deletion Syndrome awareness month. Also known as DiGeorge syndrome, this syndrome is one of the most common reasons for cardiac problems in babies. The condition is rare and before having daughter Sophia, heart mum Charlotte had never heard of the...
Warrior Wednesday: Issac

Warrior Wednesday: Issac

“When we got to Leeds it was very emotional, I just remember most of it being a blur. We would wander around trying to distract ourselves, watching this tiny little boy sleep without a care in the world.” Heart warrior, Issac’s CHD wasn’t...
Warrior Wednesday: Arthur

Warrior Wednesday: Arthur

“We will never be able to repay what they have done, and continue to do, for us.” From a place to stay while son, Arthur, was having surgery, to being able to monitor oxygen levels once they got home, heart mum Jessica recounts all the ways her family have...
Warrior Wednesday: Reggie

Warrior Wednesday: Reggie

Heart warrior Reggie has a heart condition called Hypoplastic Left Heart Syndrome (HLHS) which was diagnosed before he was born. As Reggie approaches his 6th birthday, mum Michelle shares with us her family’s story… My son Reggie is 5 years old. He was...