Transition booklet

The Transition booklet has been created with both our young people and clinicians at the Leeds Congenital Heart Unit, so it’s designed to be genuinely useful, easy to understand and relevant to you.

It’s your space to start thinking about what matters to you and what the next stage might look like.
Inside, you’ll find sections to help you explore things like your future goals, your condition, medication and exercise, as well as plenty of space to write things down. You can use it to jot notes, track important information and write down any questions you want to ask your care team.

It’s also a great way to get ready for your transition phone call or appointments, so you can feel more confident speaking up and making decisions about your health.

Transition Evenings

Transition Evenings are held virtually online by the Leeds Congenital Heart Unit, providing essential information twice a year. You will also receive a ‘Welcome To The Adult Service’ telephone appointment prior to your first ACHD appointment, once you have been referred to the Adult service.

Many young people receive their booklet ahead of their transition appointment, but if you haven’t had one yet – or would like another copy – just speak to your cardiac nurse team or CHSF’s Family & Youth Support Worker Lucy.

This is your heart journey, and the Transition Booklet is there to help you take those next steps at your own pace.